SickleFES
SickleFES is a non-profit organization in London. It focuses on providing fun, education, and support for people in the UK with sickle cell disease and their caregivers. Our main goal is to connect individuals with sickle cell disease and help them feel valued and supported. SickleFES aims to raise awareness and educate the wider community about sickle cell disease.
About Us
SickleFES is a London-based non-profit community interest organisation that is focused on providing support, education, and fun activities for people in the UK living with sickle cell disease, as well as assisting their caregivers.
Our main objective is to provide people living with sickle cell disease with a chance to connect with others like them and to help them to feel valued and supported. SickleFES aims to promote education of sickle cell disease to the wider community by raising awareness
Fun
We recognize that sickle cell is a challenging condition to live with, so our goal is to create enjoyable and meaningful experiences for individuals with sickle cell, their caregivers, and the wider community. Our aim is to not only provide support and joy to those affected by sickle cell, but also to educate the community about this condition. By organizing engaging events, activities, and programs, we hope to bring smiles to the faces of people with sickle cell and their caregivers.
Education
They say ignorance is bliss, so our objective is to eliminate the lack of knowledge surrounding sickle cell disease and provide education about this condition. There is always something to be learned, whether it pertains to the NHS for improved patient care, families and friends seeking better understanding for their loved ones, religious institutions striving to enlighten their congregations, or workplaces aiming to support their employees.
Support
We acknowledge the inherent difficulty in obtaining support during challenging times, which often leaves individuals with sickle cell feeling isolated. This sense of loneliness can greatly impact the mental health and overall well-being of those living with sickle cell disease. Hence, our aim is to offer comprehensive services that cater to the needs of both individuals with sickle cell and their caregivers, with the intent of providing the necessary support.
Get Involved!
Upcoming events
We organize inclusive events to bring together not only the sickle cell community but also to educate the wider community about sickle cell. Stay tuned for our upcoming events and be part of the experience.
See All EventsLatest Blog Posts
Hello world!
My name is Daberechi Amaechi, I have Sickle Cell Disease and I’m a mother of three beautiful girls. I am of Nigerian heritage and I grew up in southeast London with my mum, dad, and four other siblings. I was the only one out of five children who had sickle cell, and as a child, I had no clue what it was.
