A London non-profit · Est. 2023

Living
well, together,
with sickle cell.

SickleFES is a community resource that supports people living with sickle cell and their caregivers, connecting, educating and finding joy in the everyday, despite the challenges of the disease.

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Children holding up their paintings at a SickleFES art workshop

Two SickleFES members on a visit to Channel 4

Audience at a SickleFES panel discussion

About SickleFES

Built by people
who get it.

SickleFES is comprised of people living with sickle cell and passionate advocates who support those affected. We connect patients, caregivers and the wider community through fun, education and support.

We're a registered Community Interest Company so every pound you donate goes back into events, resources and care.

What we do.

Three pillars. One community.

Everything we do is about making people with sickle cell feel more supported, understood and connected. From advocating at bedsides and supporting families to running wellness programmes and creating safe spaces to connect - SickleFES is here for the community.

Fun

Socials, family days & creative outlets.

↳ Events through the year

Education

Workshops for NHS staff and workplaces, schools, panel discussions.

↳ ebooks and conversations cards

Support

Peer check -ins, hospital visits, community support liaison.

↳ A network that cares

Moments

Our community impacts.

“Finally, a room where I didn't have to explain myself.”

Tola, member

£42k

raised & spent on community programmes in 2025

From the blog

Latest thoughts.

Genotype Testing: Informed love is powerful love.

When it comes to sickle cell, many people don't fully understand the power of one simple test, a genotype test. For my family, like many others, the realities of genotype compatibility didn't become clear until after marriage when a foetus had already been formed. My parents didn't know they both carried the sickle cell gene (AS) and went on to have 5 children. They had their first born my older brother, who turned out to be a carrier...

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